SHORTLISTED FOR THE ORWELL PRIZE FOR POLITICAL WRITING 2023
AMAZON BEST BOOKS OF THE YEAR SO FAR 2023
For fans of Sapiens and The Dawn of Everything, a groundbreaking exploration of gendered oppression—its origins, its histories, our attempts to understand it, and our efforts to combat it
For centuries, societies have treated male domination as natural to the human species. But how would our understanding of gender inequality—our imagined past and contested present— look if we didn’t assume that men have always ruled over women? If we saw inequality as something more fragile that has had to be constantly remade and reasserted?
In this bold and radical book, award-winning science journalist Angela Saini explores the roots of what we call patriarchy, uncovering a complex history of how it first became embedded in societies and spread across the globe from prehistory into the present. She travels to the world’s earliest known human settlements, analyzes the latest research findings in science and archaeology, and traces cultural and political histories from the Americas to Asia, finding
In the 19th century and 20th centuries, philosophers, historians, anthropologists, and feminists began to actively question what patriarchy meant as part of the attempt to understand the origins of inequality. In our own time, despite the pushback against sexism, abuse, and discrimination, even revolutionary efforts to bring about equality have often ended in failure and backlash. But The Patriarchs is a profoundly hopeful book—one that reveals a multiplicity to human arrangements that undercuts the old grand narratives and exposes male supremacy as no more (and no less) than an ever-shifting element in systems of control.
SHORTLISTED FOR THE ORWELL PRIZE FOR POLITICAL WRITING 2023
AMAZON BEST BOOKS OF THE YEAR SO FAR 2023
For fans of Sapiens and The Dawn of Everything, a groundbreaking…
On Instagram, the private work of mothering is turned into a public performance, generating billions of dollars. The message is simple: we're all just a couple of clicks away from a better, more beautiful experience of motherhood.
Linen-clad momfluencers hawking essential oils, parenting manuals, baby slings, and sponsored content for Away suitcases make us want to forget that the reality of mothering in America is an isolating, exhausting, almost wholly unsupported endeavor. In a culture which denies mothers basic human rights, it feels good to click "purchase now" on whatever a momfluencer might be selling. It feels good to hope.
Momfluencers are just like us, except they aren't. They are mothers, yes. They are also marketing strategists, content creators, lighting experts, advertising executives, and artists. They are businesswomen. The most successful momfluencers offer content that differs very little from what we used to find in glossy women's magazines like Glamour and Real Simple, only they're churning it out daily and that content is their lives.
We flock to momfluencers to learn about fashion, wellness, parenting, politics, and to find Brooklyn-designed crib sheets printed with radishes. Chances are, if you're a mother reading this (and maybe even if you're not!), you are an arm's length away from something you've purchased because a momfluencer made it look good.
Drawing on her own fraught relationship to momfluencer culture, Sara Petersen incorporates pop culture analysis and interviews with prominent momfluencers and experts (psychologists, academics, technologists) to explore the glorification of the ideal mama online with both humor and empathy. At home on a bookshelf with Lyz Lenz's Belabored and Jia Tolentino's Trick Mirror, Momfluenced argues that momfluencers don't simply sell mothers on the benefits of bamboo diapers, they sell us the dream of motherhood itself, a dream tangled up in whiteness, capitalism, and the heteronormative nuclear family.
Momfluenced considers what it means to define motherhood for ourselves when society is determined to define motherhood for us.
On Instagram, the private work of mothering is turned into a public performance, generating billions of dollars. The message is simple: we're all just a couple of clicks away from…
The pushback that shows up in conversations about fat justice takes exceedingly predicable form. Losing weight is easy—calories in, calories out. Fat people are unhealthy. We’re in the midst of an obesity epidemic. Fat acceptance “glorifies obesity.” The BMI is an objective measure of size and health. Yet, these myths are as readily debunked as they are pervasive.
In “You Just Need to Lose Weight,” Aubrey Gordon equips readers with the facts and figures to reframe myths about fatness in order to dismantle the anti-fat bias ingrained in how we think about and treat fat people. Bringing her dozen years of community organizing and training to bear, Gordon shares the rhetorical approaches she and other organizers employ to not only counter these pernicious myths, but to dismantle the anti-fat bias that so often underpin them.
As conversations about fat acceptance and fat justice continue to grow, “You Just Need to Lose Weight” will be essential to ensure that those conversations are informed, effective, and grounded in both research and history.
The pushback that shows up in conversations about fat justice takes exceedingly predicable form. Losing weight is easy—calories in, calories out. Fat people are unhealthy. We’re…
An inclusive and landmark history, emphasizing how essential Asian American experiences are to any understanding of US history
Original and expansive, Asian American Histories of the United States is a nearly 200-year history of Asian migration, labor, and community formation in the US. Reckoning with the onset of the COVID-19 pandemic and the surge in anti-Asian hate and violence, award-winning historian Catherine Ceniza Choy presents an urgent social history of the fastest growing group of Americans. The book features the lived experiences and diverse voices of immigrants, refugees, US-born Asian Americans, multiracial Americans, and workers from industries spanning agriculture to healthcare.
Despite significant Asian American breakthroughs in American politics, arts, and popular culture in the 21st century, a profound lack of understanding of Asian American history permeates American culture. Choy traces how anti-Asian violence and its intersection with misogyny and other forms of hatred, the erasure of Asian American experiences and contributions, and Asian American resistance to what has been omitted are prominent themes in Asian American history. This ambitious book is fundamental to understanding the American experience and its existential crises of the early 21st century.
An inclusive and landmark history, emphasizing how essential Asian American experiences are to any understanding of US history
Nearly 70 famous New England writers and food activists share their writing on food and its greater meaning in our lives
A collection of essays by New England's literary greats, chefs, and food activists, Breaking Bread covers an enormous range of themes from examinations of favorite local foods like scallops and lobster, to broader food related topics including family, class, hunger, intergenerational trauma, nutrition, body image, and more.
Altogether, nearly 70 authors, including major literary figures, including Lily King, Johanthan Lethem, Susan Minot, Rick Russo, Roxanna Robinson, Lee Smith, Jenny Boylan, Christina Baker Kline, as well as nationally known food writers such as Kathy Gunst, Nancy Harmon Jenkins, Sandy Oliver, and dynamic new and established BIPOC writers like Phuc Tran, Alana Dao, Kifah Abdulla, and Reza Jalali, appear in this vibrant collection.
Profits from this collection will benefit Blue Angel, a nonprofit combatting food insecurity by geting healthy food from local farmers to those in need.
Nearly 70 famous New England writers and food activists share their writing on food and its greater meaning in our lives
Gayl Jones, the novelist Toni Morrison discovered decades ago and Tayari Jones recently called her favorite writer, has been described as one of the great literary writers of the 20th century. Now, for the first time in over 20 years, Jones is publishing again. In the wake of her long-awaited fifth novel, Palmares, The Birdcatcher is another singular achievement, a return to the circles of her National Book Award finalist, The Healing.
Set primarily on the island of Ibiza, the story is narrated by the writer Amanda Wordlaw, whose closest friend, a gifted sculptor named Catherine Shuger, is repeatedly institutionalized for trying to kill a husband who never leaves her. The three form a quirky triangle on the white-washed island.
A study in Black women's creative expression, and the intensity of their relationships, this work from Jones shows off her range and insight into the vicissitudes of all human nature - rewarding longtime fans and bringing her talent to a new generation of readers.
Gayl Jones, the novelist Toni Morrison discovered decades ago and Tayari Jones recently called her favorite writer, has been described as one of the great literary writers of the…
First discovered and edited by Toni Morrison, Gayl Jones has been described as one of the great literary writers of the 20th century. Now, for the first time in over 20 years, Jones is ready to publish again. Palmares is the first of five new works by Gayl Jones to be published in the next two years, rewarding longtime fans and bringing her talent to a new generation of readers.
Intricate and compelling, Palmares recounts the journey of Almeyda, a Black slave girl who comes of age on Portuguese plantations and escapes to a fugitive slave settlement called Palmares. Following its destruction, Almeyda embarks on a journey across colonial Brazil to find her husband, lost in battle.
Her story brings to life a world impacted by greed, conquest, and colonial desire. She encounters a mad lexicographer, desperate to avoid military service; a village that praises a god living in a nearby cave; and a medicine woman who offers great magic, at a greater price.
Combining the author’s mastery of language and voice with her unique brand of mythology and magical realism, Jones reimagines the historical novel. The result is a sweeping saga spanning a quarter century, with vibrant settings and unforgettable characters, steeped in the rich oral tradition of its world. Of Gayl Jones, the New Yorker noted, “[Her] great achievement is to reckon with both history and interiority, and to collapse the boundary between them.” Like nothing else before it, Palmares embodies this gift.
First discovered and edited by Toni Morrison, Gayl Jones has been described as one of the great literary writers of the 20th century. Now, for the first time in over 20 years,…
A National Poetry Series winner, selected and with a foreword by Kwame Dawes.
A 5-part series of interwoven poems from a dying parent to her daughter, examining the human capacity for grief, culpability, and love, asking: do we as a species deserve to survive?
Dear Specimen opens with both its speaker and her planet in peril. In "Speak to Me," she puzzles over a millipede, as if the blue rune of its body could help her understand her impending death and the crisis her species has created. Throughout the collection, poems addressed to specimens echo the speaker's concern and amplify her wonderment. A catalog of our climate transgressions, Dear Specimen's final poem foretells a future in which climate refugees overrun one of our planet's last habitable places.
The collection's lifeblood is a series of poems in which the speaker and her daughter express their concern for, and devotion to, one another. The daughter's questions mirror the ones her mother asks of specimens: what are we meant to do with so much hazard and wonder? When the speaker hints at the climate crisis in a bedtime story she tells her grandson, we, too, feel the peril he may face.
Juxtaposing a profound sense of intimacy with the vastness of geological time, the collection offers a climate-conscious critique of the human species--our search for meaning and intimacy, our capacity for greed and destruction. Dear Specimen is an extended love letter and dire warning, not only to the daughter its speaker leaves behind but to all of us.
A National Poetry Series winner, selected and with a foreword by Kwame Dawes.
A 5-part series of interwoven poems from a dying parent to her daughter, examining the human…
Explores the Black activist's ideas and political strategies highlighting their relevance for tackling modern social issues including voter suppression, police violence, and economic inequality.
A blend of social commentary, biography, and intellectual history, Until I Am Free is a manifesto for anyone committed to social justice. The book challenges us to listen to a working-poor and disabled Black woman activist and intellectual from the past as we grapple with contemporary concerns around race, inequality, and social justice. Hamer's ideas and fearless activism reveal how we all, regardless of race, gender, sexuality, ability, economic status, or educational background, have the power to transform society.
Born in Webster County, Mississippi, Fannie Lou Hamer (1917-1977), the youngest of twenty children, was the granddaughter of enslaved people and worked as a sharecropper before dedicating herself to activism. Hamer fought for her community by working for the Student Nonviolent Coordinating Committee (SNCC), assisting with Black voter registration, and serving as vice chair of the Mississippi Freedom Democratic Party.
Hamer’s 1964 televised speech before the DNC's credentials committee was delivered before millions, and addressed two central issues that remain relevant today: voter suppression and state-sanctioned violence. Hamer described the scare tactics and violence she and other African Americans experienced and their lack of access to the vote. Throughout her life, Hamer fought for Black voting rights, social justice, women's empowerment, human rights and economic rights.
Explores the Black activist's ideas and political strategies highlighting their relevance for tackling modern social issues including voter suppression, police violence, and…
Illuminates the far-reaching harms of believing that natural means “good,” from misinformation about health choices to justifications for sexism, racism, and flawed economic policies.
People love what’s natural: it’s the best way to eat, the best way to parent, even the best way to act—naturally, just as nature intended. Appeals to the wisdom of nature are among the most powerful arguments in the history of human thought. Yet Nature (with a capital N) and natural goodness are not objective or scientific. In this groundbreaking book, scholar of religion Alan Levinovitz demonstrates that these beliefs are actually religious and highlights the many dangers of substituting simple myths for complicated realities. It may not seem like a problem when it comes to paying a premium for organic food. But what about condemnations of “unnatural” sexual activity? The guilt that attends not having a “natural” birth? Economic deregulation justified by the inherent goodness of “natural” markets?
In Natural, readers embark on an epic journey, from Peruvian rainforests to the backcountry in Yellowstone Park, from a “natural” bodybuilding competition to a “natural” cancer-curing clinic. The result is an essential new perspective that shatters faith in Nature’s goodness and points to a better alternative. We can love nature without worshipping it, and we can work toward a better world with humility and dialogue rather than taboos and zealotry.
Illuminates the far-reaching harms of believing that natural means “good,” from misinformation about health choices to justifications for sexism, racism, and flawed economic…
From the creator of Your Fat Friend, an explosive indictment of the systemic and cultural bias facing plus-size people that will move us toward creating an agenda for fat justice.
Anti-fatness is everywhere. In What We Don't Talk About When We Talk About Fat, Aubrey Gordon unearths the cultural attitudes and social systems that have led to people being denied basic needs because they are fat and calls for social justice movements to be inclusive of plus-sized people's experiences. Unlike the recent wave of memoirs and quasi self-help books that encourage readers to love and accept themselves, Gordon pushes the discussion further towards authentic fat activism, which includes ending legal weight discrimination, giving equal access to health care for large people, increased access to public spaces, and ending anti-fat violence. As she argues, I did not come to body positivity for self-esteem. I came to it for social justice.
By sharing her experiences as well as those of others--from smaller fat to very fat people--she concludes that to be fat in our society is to be seen as an undeniable failure, unlovable, unforgivable, and morally condemnable. Fatness is an open invitation for others to express disgust, fear, and insidious concern. To be fat is to be denied humanity and empathy. Studies show that fat survivors of sexual assault are less likely to be believed and less likely than their thin counterparts to report various crimes; 27% of very fat women and 13% of very fat men attempt suicide; over 50% of doctors describe their fat patients as awkward, unattractive, ugly and noncompliant; and in 48 states, it's legal--even routine--to deny employment because of an applicant's size.
Advancing fat justice and changing prejudicial structures and attitudes will require work from all people. What We Don't Talk About When We Talk About Fat is a crucial tool to create a tectonic shift in the way we see, talk about, and treat our bodies, fat and thin alike.
From the creator of Your Fat Friend, an explosive indictment of the systemic and cultural bias facing plus-size people that will move us toward creating an agenda for fat justice.…
A vibrant and empowering history that emphasizes the perspectives and stories of African American women to show how they are--and have always been--instrumental in shaping our country
In centering Black women's stories, two award-winning historians seek both to empower African American women and to show their allies that Black women's unique ability to make their own communities while combatting centuries of oppression is an essential component in our continued resistance to systemic racism and sexism. Daina Ramey Berry and Kali Nicole Gross offer an examination and celebration of Black womanhood, beginning with the first African women who arrived in what became the United States to African American women of today.
A Black Women's History of the United States reaches far beyond a single narrative to showcase Black women's lives in all their fraught complexities. Berry and Gross prioritize many voices: enslaved women, freedwomen, religious leaders, artists, queer women, activists, and women who lived outside the law. The result is a starting point for exploring Black women's history and a testament to the beauty, richness, rhythm, tragedy, heartbreak, rage, and enduring love that abounds in the spirit of Black women in communities throughout the nation.
A vibrant and empowering history that emphasizes the perspectives and stories of African American women to show how they are--and have always been--instrumental in shaping our…
An engaging exploration of what it means to be asexual in a world that’s obsessed with sexual attraction, and what the ace perspective can teach all of us about desire and identity.
What exactly is sexual attraction and what is it like to go through life not experiencing it? What does asexuality reveal about gender roles, about romance and consent, and the pressures of society? This accessible examination of asexuality shows that the issues that aces face—confusion around sexual activity, the intersection of sexuality and identity, navigating different needs in relationships—are the same conflicts that nearly all of us will experience. Through a blend of reporting, cultural criticism, and memoir, Ace addresses the misconceptions around the “A” of LGBTQIA and invites everyone to rethink pleasure and intimacy.
Journalist Angela Chen creates her path to understanding her own asexuality with the perspectives of a diverse group of asexual people. Vulnerable and honest, these stories include a woman who had blood tests done because she was convinced that “not wanting sex” was a sign of serious illness, and a man who grew up in a religious household and did everything “right,” only to realize after marriage that his experience of sexuality had never been the same as that of others. Disabled aces, aces of color, gender-nonconforming aces, and aces who both do and don’t want romantic relationships all share their experiences navigating a society in which a lack of sexual attraction is considered abnormal. Chen’s careful cultural analysis explores how societal norms limit understanding of sex and relationships and celebrates the breadth of sexuality and queerness.
An engaging exploration of what it means to be asexual in a world that’s obsessed with sexual attraction, and what the ace perspective can teach all of us about desire and…
A frank, humorous exploration of interabled dating, love, and marriage
Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street.
But In Sickness and in Health is more than an “inspiring” story of how a man born with spinal muscular atrophy—a congenital and incurable neuromuscular condition—survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders—those who consider his wife a “saint” or him just plain “lucky” for finding love—he issues a challenge to readers: why should the idea of an “interabled” couple be regarded as either tragic or noble?
Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship—the financial burdens, the physical differences, the added element of an especially uncertain future—could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of?
We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There’s Rachelle Friedman, the “paralyzed bride,” as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby’s disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love—from the first blush of sexual awakening to commitment and marriage and through to widowhood.
A frank, humorous exploration of interabled dating, love, and marriage
Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of…
A bold and uncompromising feminist manifesto that shows women and girls how to defy, disrupt, and destroy the patriarchy by embracing the qualities they’ve been trained to avoid.Seizing upon the energy of the #MeToo movement, feminist activist Mona Eltahawy advocates a muscular, out-loud approach to teaching women and girls to harness their power through what she calls the “seven necessary sins” that women and girls are not supposed to commit: to be angry, ambitious, profane, violent, attention-seeking, lustful, and powerful. All the necessary “sins” that women and girls require to erupt.Eltahawy knows that the patriarchy is alive and well, and she is fed the hell up: Sexually assaulted during hajj at the age of fifteen. Groped on the dance floor of a night club in Montreal at fifty. Countless other injustices in the years between. Illuminating her call to action are stories of activists and ordinary women around the world—from South Africa to China, Nigeria to India, Bosnia to Egypt—who are tapping into their inner fury and crossing the lines of race, class, faith, and gender that make it so hard for marginalized women to be heard. Rather than teaching women and girls to survive the poisonous system they have found themselves in, Eltahawy arms them to dismantle it.Brilliant, bold, and energetic, The Seven Necessary Sins for Women and Girls is a manifesto for all feminists in the fight against patriarchy.
A bold and uncompromising feminist manifesto that shows women and girls how to defy, disrupt, and destroy the patriarchy by embracing the qualities they’ve been trained to…
A revealing portrait of one of the most gifted and charismatic, yet least understood, Black artists and intellectuals of the twentieth century.
Lorraine Hansberry, who died at thirty-four, was by all accounts a force of nature. Although best-known for her work A Raisin in the Sun, her short life was full of extraordinary experiences and achievements, and she had an unflinching commitment to social justice, which brought her under FBI surveillance when she was barely in her twenties. While her close friends and contemporaries, like James Baldwin and Nina Simone, have been rightly celebrated, her story has been diminished and relegated to one work—until now. In 2018, Hansberry will get the recognition she deserves with the PBS American Masters documentary "Lorraine Hansberry: Sighted Eyes/Feeling Heart" and Imani Perry's multi-dimensional, illuminating biography, Looking for Lorraine.
After the success of A Raisin in the Sun, Hansberry used her prominence in myriad ways: challenging President Kennedy and his brother to take bolder stances on Civil Rights, supporting African anti-colonial leaders, and confronting the romantic racism of the Beat poets and Village hipsters. Though she married a man, she identified as lesbian and, risking censure and the prospect of being outed, joined one of the nation's first lesbian organizations. Hansberry associated with many activists, writers, and musicians, including Malcolm X, Langston Hughes, Duke Ellington, Paul Robeson, W.E.B. Du Bois, among others. Looking for Lorraine is a powerful insight into Hansberry's extraordinary life—a life that was tragically cut far too short.
A revealing portrait of one of the most gifted and charismatic, yet least understood, Black artists and intellectuals of the twentieth century.
When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver—cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death?
The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death.
What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems.
In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.
When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time…
How interracial love and marriage changed history, and may soon alter the landscape of American politics.
Loving beyond boundaries is a radical act that is changing America. When Mildred and Richard Loving wed in 1958, they were ripped from their shared bed and taken to court. Their crime: miscegenation, punished by exile from their home state of Virginia. The resulting landmark decision of Loving v. Virginia ended bans on interracial marriage and remains a signature case--the first to use the words "white supremacy" to describe such racism.
Drawing from the earliest chapters in US history, legal scholar Sheryll Cashin reveals the enduring legacy of America's original sin, tracing how we transformed from a country without an entrenched construction of race to a nation where one drop of nonwhite blood merited exclusion from full citizenship. In vivid detail, she illustrates how the idea of whiteness was created by the planter class of yesterday and is reinforced by today's power-hungry dog-whistlers to divide struggling whites and people of color, ensuring plutocracy and undermining the common good.
Cashin argues that over the course of the last four centuries there have been "ardent integrators" and that those people are today contributing to the emergence of a class of "culturally dexterous" Americans. In the fifty years since the Lovings won their case, approval for interracial marriage rose from 4 percent to 87 percent. Cashin speculates that rising rates of interracial intimacy--including cross-racial adoption, romance, and friendship--combined with immigration, demographic, and generational change, will create an ascendant coalition of culturally dexterous whites and people of color.
Loving is both a history of white supremacy and a hopeful treatise on the future of race relations in America, challenging the notion that trickle-down progressive politics is our only hope for a more inclusive society. Accessible and sharp, Cashin reanimates the possibility of a future where interracial understanding serves as a catalyst of a social revolution ending not in artificial color blindness but in a culture where acceptance and difference are celebrated.
How interracial love and marriage changed history, and may soon alter the landscape of American politics.
Loving beyond boundaries is a radical act that is changing America.…
How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes
Hidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers.
Paradoxically, comprehensive electronic files for patient treatment—the reason medical data exists in the first place—remain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally.
It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world’s dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich’s hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits.
Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it’s our data.
How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes
